Monday, August 20, 2012

 Rural TV Feature on Bryson and Donation Information!

Well, the night we have all been waiting for has finally arrived! My little man got his 5 minutes of fame on Rural TV (RFDTV) which is a farm and ranch channel on Dish Network. They featured his recent barrel race event (Barrels 4 Bryson) on the last five minutes of the show. This event was held to raise money for Bryson's next sem cell treatment and will be an annual event. They put the segment together very quickly, so there was no interview and not a lot of information was given about Bryson, but they did show pictures of him and they showed a couple of runs from the race. I wish they had told Bryson's story, but they did at least give the web address to this blog spot, so maybe a few people will read his story and find out a little more about this special little boy we all love and adore! I want to thank Dr. Wes Williams, Merck, Adequan and Platinum Performance for sponsoring this event! We raised a ton of money for Bryson's next stem cell treatment and we appreciate it so much. We can't wait to get back to Nova Cells Institute in Mexico to get his second treatment because he is doing so well from the first one. Bryson has made HUGE improvements since he had stem cell treatment! His balance is better, his core strength is better, his appetite and eating habits are better and he's gained weight and grown a mile, he is moving toes, feet and legs now, his bladder and bowel issues are getting better and he is not having to take so many medications, he is crawling on his hands and knees, and he is walking with braces and a walker now! These are all things that are truly amazing and we thank God first and foremost for His healing and placing those stem cells where they need to be and we thank Nova Cells for providing those cells to our little guy so he can have his dream of walking become a reality. Bryson will go back to Mexico in February or March of next year for his second treatment. I will be looking for an intensive physical therapy program for him to get enrolled in before we go back for the second treatment. These programs are so very expensive, so our fundraising days aren't over yet! A two week to four week program costs anywhere from $7,000 to $13,000. Yikes! We also need a very expensive ($26,500) piece of therapy equipment for our home that we are still trying to raise money for. We are just having faith and knowing that God will provide! If anyone wants to donate to Bryson's fund, I have information on how you can donate right here to the right side of this blog. Anyone can donate by making a check payable to Warrior Families Beating Spina Bifida Foundation for Bryson Chailer. This foundation is a non-profit foundation that was founded by myself and another mom and every donation is tax deductible. Our foundation will be helping others with spina bifida by granting money for alternative therapies and therapy programs, equipment, stem cell treatment, etc. Check out our website at www.warriorfamiliesbeatingspinabifida.org. If anyone would like to sponsor an event for Bryson or for the foundation, you can contact me at 903-268-2998 or you can email me at karaunderwood@msn.com God is doing a might work in Bryson and this little boy is such a testimony! He is such a joy and he truly touches the lives and hearts of everyone he meets. I am so proud of him and I am so blessed to be his mom. He has come so far in his battle with spina bifida! I want to say thank you to God and to every single person who has ever donated to his fund in any way. You all have made a profound difference in the life of a little boy of wants to walk so badly. We still have a long road ahead of us, so please keep spreading the word so we can keep the donations coming in! We will forever live by the word of God that says, "I can do all things through Christ who strengthens me" BRYSON WILL WALK!!!!!!!!

Tuesday, July 10, 2012

 Progress Report and Event Coming Soon!

Wow, it's been a while since I've posted any news! Sorry about that! Seems like all I do is run the roads with Bryson these days, taking him to appointment after appointment. Bryson continues to show progress from the stem cell treatment he had almost 3 mos ago. He is actually getting on his hands and knees now, in a crawling position, and is crawling a few steps at a time. He used to only be able to army crawl, pulling himself with his arms, with his little legs dragging behind him. I was standing there in total shock and disbelief when he was doing it! Very exciting to see! He is still going poop with no medications whatsoever and he is going like clockwork every night at 6pm when I sit him on the potty. This is great news for a kid with spina bifida, because the bladder and bowel has such issues due to damaged nerves. He still doesn't feel the "urge" to go, but he goes and it's a giant step forward! We're still not sure about what effects the stem cell treatment is having on his bladder because he still has the vesicostomy in place, but I am confident that when he has a urodynamics test done in August, to test the bladder function, it will show great results and we can have the vesicostomy reversed. Bryson is continuing the get stronger and has more endurance while walking in his RGO braces, with his walker and he is also gaining muscle mass and is growing taller. A big barrel race event is coming up on July 20th and will be the 2nd barrel race event to raise money for Bryson's next stem cell treatment. It's gonna be phenomenal! My parents' vet, Dr. Wes Williams, is putting it on and it is going to be top-notch, to say the least. It's going to be a 3 day event, with wonderful prizes, such as hand-crafted saddles, buckles, IPads, and $15,000 in cash money! Way bigger than the one we had last year! Even more amazing is, the tv show RFDTV is going to do a 15 min segment that will be televised on a show called Horse Talk. RFDTV is a farm and ranch show on cable and has about 3-4 million viewers! As soon as I find out the air date, I will let everyone know so they can watch it because and Bryson and I will be interviewed! God is working in a big way in this little boy and in our family right now. I am continually praising Him for all His blessings and favor that are being poured out over us and Bryson. I posted Bryson's progress after stem cell treatment on a spina bifida facebook page and I am getting an overwhelming amount of moms wanting information on stem cell treatment and I am honored to be able to help those moms by telling them of our experience with stem cell treatment and by helping their children get the help they need to give them better quality of life through stem cells. Nova Cell Institute, and the treatment they do, has been such a blessing in our life and I am so happy to share everything with these moms! I truly feel God is using Bryson in a big way to help others. Thank you Jesus for your healing!

Monday, May 21, 2012

 Still Improving Every Day!

Bryson continues to improve every day since he had his first stem cell treatment! The doctors that did the procedure are just amazed at how quickly we started seeing results. The acupuncturist told me at his appointment on Friday that there was so much more going on than before! She usually does acupuncture on him with a probe that has these wet q-tips on the end of it that uses electrical currents, but this time she used traditional Chinese acupuncture with the needles. She said she felt so many things she had never felt before and that his legs and feet jumped and responded in ways they had not before his stem cell treatment. After a couple of minutes with the needles in, he actually started sweating and got a little flushed and he got a really strange look on his face and hid his eyes and almost started to cry. She took the needles out and said it was because for the first time he was having a bit of sensory overload, which means he was feeling things he had never felt before and was not able to express what he was feeling. She said sometimes it feels like you are about to faint and children his age can't express what that feels like so he teared up. Bryson's balance continues to get better and better. He doesn't prop with his hands as much when he is sitting and he uses both hands out front for way longer than he used to and can even put his arms over his head and not immediately fall. He is getting on his knees and holding that position for much longer now than he did before. Before he would get on his knees and within a couple of seconds his legs would collapse under him. He can now sit on his knees for quite some time and while he's on them he swings his hips back and forth. We thank God on a daily basis for Bryson's healing and for putting those stem cells right where they need to be and we thank Him for the day that our little boy walks for the first time!!!!!

Monday, May 14, 2012

 More Progress from God and Stem Cells!

Great news!!!! My mom and I were at a store in Emory called Alco with Bryson the other day, (she was getting him a toy, and yes, he is spoiled rotten like that, but that's neither here nor there) and we both noticed while he was in the shopping cart that he was extending his left leg a the knee! We both looked at one another and just giggled and I pushed his little leg back down and he straightened it out again, and again, and again! Well, Bryson had therapy today and his therapist confirmed that he definitely has firing of his quad and hamstring in his left leg and that he was moving it by using those muscles! Woohoo! Praise God! Also, she said he has some firing in his right hip as well! Woot,woot and praise God again! God is putting those stem cells right where they need to be and He's doing it quicker than we ever imagined! So, now Bryson has movement in his foot and toes on the left foot, slight movement in his right foot and toes, firing in his left quad and hamstring, and firing in his right hip! Glory be to the most awesome, amazing, powerful God I serve! At this rate, Bryson will not only be walking, but running in the next couple of months! Stay tuned for more to come.........